My heart warrior Kaylee is coming up on 6 years old this February. She's only had to have surgery once when she was about 6 months old. Sometimes I forget about her CHD. You live your life day in day out, I forget that internally her heart isn't the same as mine. I forget that she's going to have this struggle her whole life. I don't know if I'm slightly in denial and forget on purpose. Now that it's winter, I get reminders much more often. The biggest one; purple hands. Kaylee managed to stay healthy the entire covid filled year while doing remote learning. The moment she returned to school, she was sick within a week. Then it is back to measuring OT, watching her like a hawk, buying 10 different types of medicine so she doesn't mind the taste. To sum it up, sometimes it's easy to forget our kids are fighting something. Then something happens and you are snapped back to reality. All the worry, fear, anxiety rushes back in. That's when they need you the most.
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